Advocating for the Australian MPN community

You don't have to face a rare blood cancer on your own.

Myeloproliferative neoplasms (MPNs) are rare — so it's easy to feel isolated after a diagnosis. We're a community of Australian patients, carers and families sharing trustworthy information, real stories and support, and helping fund the research working towards a cure.

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water_dropBy patients, for patients
water_dropMade for Australia
water_dropEvidence-based
water_dropPatients and carers
water_dropFunding a cure

Understanding MPNs

Myeloproliferative neoplasms are rare blood cancers where the bone marrow produces too many blood cells. While complex, understanding the three main types is the first step.

A professional haematology laboratory setting with blood sample vials and scientific equipment.
A warm, unhurried consultation between an Australian doctor and a patient.

Newly Diagnosed?

Take it one step at a time. We've mapped out the essential early steps to help you regain a sense of control.

1

Understand your diagnosis

Access plain-English, medically reviewed information about your specific MPN.

Read the basics →
2

Prepare for appointment

Download our checklist of questions to ask your haematologist.

Get the checklist →
3

Connect with others

Join our secure online community or find a local support group in Australia.

Find support →
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"It started with one patient who couldn't find any answers"

"There was so little Australian information that I set out to rectify it — so no one else would have to search alone."

- Ken, MPN patient and community founder

An older Australian man sitting at a desk with a laptop, reflecting on his journey.
An Australian medical researcher working at a laboratory bench.

Help fund the search for a cure

Your donation directly supports vital Australian research into myeloproliferative neoplasms and helps us maintain resources for the patient community.

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Stay connected. You won't walk this alone.

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